all posts, community, eczema, mental health, miscellaneous, mortality, parentings/things about baby and kids, women's health

old plans meet new horizons (aka what I do when the little one sleeps)

woman carrying baby near green trees
Photo by Shari Murphy on Pexels.com

In the past, I may have mentioned how I am obsessed with the fourth trimester and all things postpartum, or how when I was in my physical therapy doctorate program, I was interested in going into a women’s health specialty.

After I left the program, I searched for ways to slowly transition into the women’s health field from a different angle. And so from April through October 2018, I worked as a women’s health information specialist for Dr. Brianne Grogan, a women’s health PT and health and wellness coach and the creator of FemFusion Fitness. It was one of those random connections that seems fortuitous- in fact I had contacted her years ago after reading her book (way before I even had applied to PT schools) because I was interested in learning more about women’s health.

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My job for her entailed handling email inquiries from women trying to understand

  • what was going on with their bodies
  • what content Bri had out, and
  • who they should see (doctors, PTs, etc).

I also worked on various projects like helping make distributable content for bone building exercises, and I collected research for her new topics. On occasion I did some help with audience outreach to get her free content out into the world.

In time though we amicably went our separate ways. She moved on to focus more on holistic health practices and less on women’s health physical therapy and rehabilitation specifically, and so I continued on in my own direction, which at the time mostly included prepping for my baby’s arrival into the world. Working for Bri was an awesome opportunity because not only is she the nicest, but I got to brush the cobwebs out of my brain about women’s health rehabilitation and really delve into the subject (if you haven’t checked it out already, her youtube is full of free videos of explanations and exercises that cover a gambit of topics like prolapse, diastasis recti, pelvic pain, etc. Check it out here).

Afterward having my baby, I had not lost the love for the fascinating field of women’s health, I merely needed time to rethink how I could enter the world as a professional, no longer coming from the physical therapy realm.

I had been contemplating the idea of becoming a postpartum doula for a long time, and I finally realized what I was missing in that thought process. My objective couldn’t be simply to become a traditional postpartum doula because I would always have to explain about my skin condition, that I’m not contagious, what that means for my services, and work around my own flares and down time. But in reality when I was thinking about my own limitations, I should have been thinking about who could relate to having them. This led me to thinking about those expecting, new, or seasoned moms that have to live with eczema or other chronic conditions (shoutout to all the spoonies out there!) while growing/raising a babe or two (or three or more), and what their needs might be.

It’s not uncommon for people with chronic illnesses to have higher rates of depression, and it’s not uncommon for moms to suffer from postpartum depression, so what about those unlucky ladies that get hit with both? How do they find a support system that bridges both gaps, knowing that some of their depression comes from living with an incurable condition, and the other from being steamrolled with new hormones and emotions as a new life blends into theirs? That is a demographic I feel has not been studied or served enough. And so, I have begun to slowly pull my own experiences (both personal and professional) to better understand and then serve this group. I have been working on merging three of my interests to accomplish this:

  1. postpartum education (e.g my postpartum doula course and my position researching and writing postpartum mental health pieces),
  2. community engagement projects (two in the works: one to help educate mamas of color who may face discrimination from the medical/healthcare world or not have access to it at all, and one about how to train churches to better serve new moms in their area), and
  3. volunteering more with the National Eczema Association. This helps me to be in the know about what policies are being created (or challenged), as well as what new treatments or practices are out.

I use these three directions to help understand my own struggles, as well as figure out how I might work to help mothers out there like me (or other parents/caregivers!). It also gives me more reasons to continually I brush up on healthcare policies, systemic support options, familial/community building techniques, measurable outcome scales, all manner of recent research and studies, etc, which I tend to like to peruse anyway.

I have also been exploring the other side of my interests- traditions and cultures around death. Soon I will be taking Alua Arthur’s End of Life training and learn how to best serve individuals and their families around their time of dying. I think it’s such a taboo thing that we really need to talk about more. The amount of people with traumatizing stories and feelings of regret around their loved ones times of dying is astounding, and historically many cultures prevented this by being present and accepting death as nature, not some scary thing never to be spoken about. As Alua says “talking about sex won’t make you pregnant. Talking about death won’t make you dead.”

I think talking about mortality brings up some important conversations (even just with oneself) about the relative value of our day to day decisions. Interestingly enough, many of my postpartum books now overlap with my study of death. I recently read Overwhelmed: Work, Love, and Play When No One Has the Time by Briget Schulte and it had multiple mentions of how mortality was regarded over the years, and how that was reflected in how we approach our day to day lives, including our aggressive work-above-all work culture today. The logic is, if you think about your mortality to a normal moderate amount, you make choices that are more centered around your mortality. We aren’t talking about the “YOLO” ideology, but rather decisions such as ‘maybe you don’t need to take that extra late business call that’s not really mission critical in lieu of spending time with your loved ones’, and that kind of logic.

Oh that reminds me- I did recently finish a class through Mothering Arts about how to create a community supported postpartum space that I really enjoyed. It offered lots of insight in how to welcome in new mamas as well as community “grannies” and draw-in local professional women to offer their expertise to the moms. My only rub is that I want to create a larger scale space than that demographic (though not necessarily a large number of people at one time). I want to create a space (maybe a physical community shop) that welcomes everyone is to have discussions, seek community, find aid… almost something that mixes time banks, death cafes, postpartum meet-ups, with a part-time bartering system, all wrapped into a welcoming looking shop. I get inspired by places like HausWitch though my target audience is slightly different.

Obviously my long term goals are still being constructed, but I think one day I would like to own this type of shop with my sister (who is paving her career in graphic design/UX and my best friend (who is a social worker), offering classes and discussions, innovative tech, and community services centered around the biggest times of change (birth/postpartum, and death). We also want to raise families together so working together would give us the time and space to figure out how to make it all work. ❤

On the book front, I’m currently reading Witches of America by Alex Mar which I’m finding so inspiring. It’s not that I want to be a witch per se, but I love learning about different routes of beliefs and what draws people to them, and Mar explores this topic so well.

Anyway, as the colder months approach, I’m in the hibernation phase of life again. Lots of reading, snuggles with the little one, obsessions with soups, teas, and decaf lattes. My family and I are moving soon, which is a new adventure on its own because we are finally leaving Massachusetts, but is a lot of mental overload on how to move across multiple states (any advice is welcome). The move might be hugely impactful on my skin too because I think my condition gets worse in the fall due to a mold allergy (and fall here is pretty moldy!). I’m actually friggin’ psyched to be moving- but more on that another day.

 

all posts, community, mental health, miscellaneous, nature/the environment

the night school (part 1)

cold dark eerie environment
Photo by Pixabay on Pexels.com

I like finding free things to do online (21 days of yoga, weekly journal prompts, etc). I don’t always carry through with many of them, but I enjoy the challenge and the game of setting up something to do, and usually am drawn towards things that involved a lot of self reflection.

This particular project is called The Night School by Maia Toll. I am doing the “part-time” option, which means I will be focusing on the weekly writing prompts (because I don’t have the time or attention span to watch the discussion and ritual videos… I’m still not super into watching videos that require intense focus). But even so, just doing the weekly prompts includes readings from her book (see below) and some general context and discussion points. I look forward to seeing what comes of doing it for the “semester”.

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This week’s assignment was: What in the world feels alive to you and what feels lifeless? Why? Examine your preconceptions.

What feels alive to me? I think I define aliveness too literally, but the email also goes into detail about the energies of things which I find easier to relate to. When I was growing up in Maryland we lived near a small woods. The woods were cool because you couldn’t really get lost in them (it was fairly easy to run out into some neighborhood), but if you knew your way, you could walk through the woods to get all the way to the C&O canal without having to pass really anyone’s homes. I often went into these woods when I was annoyed or upset, or just when I wanted to bike/run through, and if it was getting later in the day and darkness started creeping in (as it always did in the woods before the neighbors since there were so many trees) I remember at some point I started talking to the woods asking for safe passage. I specifically would say the same phrase every time, in French, because I thought the language was older and thus more likely that the trees would know it. Now it’s also interesting because I never had the feeling that the woods were hostile or required me to ask for safe passage, but I always felt it deserved the respect of the question anyway, and that more likely the woods would protect me from something else. In other way, I never had anything bad or shady happen to me in the woods and I continue to visit it when I visit my parents.

Now living in the city where I do I have become much more anxious than I used to be. Part of it was working through my own neuroses of being a stay-at-home mom in a culture where that is very unusual (I am also a young mom in this particular city culture). But even as I work through that hurdle, I realize the city itself makes me anxious. It has such haphazard energy all the time. It is alway noisy during the day (July and September seem to be when all the road construction happens), but it’s also a tiny city that has narrow streets and crazy road patterns, and yet the same 1/4 mile strip of street will be shared with 3 separate road construction projects, 50+ cyclists who have to weave into car traffic to pass one another or to turn, pedestrians that no one can see due to parked cars, standing aside cross walks that have varying degrees of visibility (from electronically lit up to make shift single cones denoting the spot on the sidewalk where they should start to cross). The energy is impatient. People are constantly walking around, no smiles to spare (I often try to say hello to humans on principle and get a range of results). Though the speed isn’t always fast, the tempo varies abruptly as though the very act of having to engage with one another is a burden. And the chug of cars is never-ending. We have driven at all times and find that 3am to 8am is a pleasant time to drive on a weekend in the city. On a weekday, it’s more like 3am to 7am. The weather can be obnoxious, from sun beating down at all angles (it’s literally always directly in our faces when we drive in any direction in the morning) and the winds pick up strong enough to blow away our baby on account of the various wind tunnels created by lots of buildings and few trees. It feels chaotic and it often makes me agitated to encounter it. It took me a long time to realize that this pulse of energy existed and how it impacted me but over time it has become more clear.

Now that is not to say there aren’t pockets that are more peaceful. I keep finding some but the problem is they are hard to get too or fleeting in nature. For example, I jogged through the tree-part of the city to get to an open house for a toddler music class, and minus the fear of being late, the whole adventure was quite relaxing. It had the iconic early fall feel and the class was very cute. That kind of energy emitted a peace that I crave often, and as such, I’ll definitely be taking Fi back, but always by foot if possible.

Examining my preconceptions… well in a nutshell it would seem to follow the standard assumption of city = bad energy, and woods = good energy. But it could be argued that the reason I enjoyed my parents’ woods was because it was near enough to civilization that I never had to feel lost or in real danger. And it could be argued that there are cities that can exude a good time of peaceful energy, particularly ones that are not so jammed with traffic, have more explicit community, and dedicate more time to their green spaces equally across their land. And I know I personally wouldn’t enjoy living in a large woods all alone. I like people- or well, I like community. I think both extremes: alone in a large wood and emotionally alone in a dense city have the same energy to me, fearful. There is something I find primally terrifying about being alone. And not in a “I’ll have to do things for myself kind of way” but in a “no one will have your back if something goes wrong” kind of way. So resonant energies that feel good to me have to leak some kind of energy that feels communal. A crowded Boston T train doesn’t feel communal because everyone is looking out for themselves, usually annoyed to be on the train, and avoiding eye contact with one another, pretending they are alone while sandwiched like sardines. The idyllic memoirs of people traveling in European trains not so long ago had more of the communal feel, with older adults looking out for young children traveling alone, with space on trains to sit and eat, with an impetus to reach out and connect to your neighbor if for no other reason that to pass the time (and that was not unique to Europe, I just happened to have read a French memoir more recently).

Anyway, I’ll stop there for now. My brain has travelled off on to other things.

all posts, miscellaneous

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I’m combining all my other blogs’ content to this site. Please bear with me as I post older content.  🙂

 

I am a romantic of old:

I dream with eyes open,

I remember life by specific scents and vivacious colors.

But straddling the line of before and after, of life pre and post infinite connection,

I find myself falling more towards the latter side, the untethered,

and further away from the screen-lite kind of life.

I have forgotten how to thrive in the recesses of my own mind,

with no eye to the audience,

pure expression, without the likes and follows.

And yet, I am not and have never been, by any means a purist.

Though I long for past eras, of strong communities, non-virtual,

I love (or am addicted to) the appeal of the always available.

There is always more to learn,

experiences to witness that I didn’t know of

and life to try.

Though, do I want to?

Is it that I now desire the domestic,

or that I long for stable roots from which to grow?

Is the constant creeping cloud of worry due to not knowing how to say “my experiences are enough”?

From wanting, when sharing occurs, for it to be from others via their own lips,

or some other slower, less show-y manner?

Can I not just miss out on what I don’t know,

the fear of regret assuaged by the realization that what makes for a good life,

is still yet the most subjective of all?

So perhaps if I just follow my ephemeral heart and gut,

they won’t lead me astray.

all posts, community, miscellaneous, nature/the environment

the man who tamed the birds

white birds perched in front of lamppost
Photo by Artem Beliaikin on Pexels.com

I’m combining all my other blogs’ content to this site. Please bear with me as I post older content.  🙂

There are moments when we see something amazing, something that is out of the ordinary or just generally impressive. In these moments, it’s often the case that what we are seeing is Time.

As a new mom, with the privilege of choice to stay at home (which in itself is a misnomer of a phrase because the babe and I often venture out of the home ), I have an unprecedented view of Time. That isn’t to say that I have more time than anyone else, but that I am in a unique position to view it.

Often I must wait it out with Time as my babe sleeps. Time waits for no man, or so they say, but it does cozy down with a parent waiting on a sleeping child. Time and I, we sit and drink tea, and read books, and very often daydream in the quiet stolen moments of when the baby slumbers.

When the baby is awake we sometimes accompany Time on his off moments, the pockets of space where others are ensconced in their own busyness, to head out as a mother-daughter dyad and explore the world. We meander along aimlessly, especially if the weather is fair.

On one such occasion, walking down what I consider a confused highway (Mass Ave), the baby and I encountered Time as he followed along beside an older Asian man. This man caught my eye as I walked by because he too, clearly had noticed Time and abruptly but unalarmingly, stopped not too long after passing me and the baby by.

But what really kept my attention were the birds. They, these pigeons of the city, noticed the man’s approach and quickly behaved like their feral-er cousins and flocked, in rolling bumbling waves, towards the man until they were crowded opposite to him, separated by the chains of an open air lot.

The man, clearly practiced, produced a black pouch from his person, opened it deftly, and began methodically tossing measured handfuls of some sort of seeds to the bird crowd. The pigeons continued their rolling bumble over one another as they entropically scattered to maximize their collection rates.

All through this, I had slowed down myself, intrigued by this fellow Time companion, and smiled as I thought about how after this gentleman must have routinely stopped with Time to have these birds now recognize his approach in earnest.

If you ask me, I can generically say where I was (though I never know what road it was save for off Mass Ave, but I have no recollection of the hour or day. I have seen him once again since that first encounter. This second sighting, in which I paused my husband to witness as well, all I can recall are he man and his black pouch full of seeds. Other than that, Time has rubbed away any other specifics from my mind, because indeed those specifics don’t matter.

all posts, eczema, miscellaneous

healing skin, hormones, and hot nights

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Photo by Pixabay on Pexels.com

It’s currently 3am and I’m awake despite the little one actually having been asleep since 830ish.

“Why on earth are you awake?”, you may be asking yourself, and rightly so.

Well let me tell you, internet reader. I am hot.

Now though the ambient temperature in the room feels cool, I know I set my thermostat a bit high (in my defense, with the skin disorder I’m usually always freezing, and the baby likes it warm too). However, I am not sweating. I’m just really warm. Warm enough to sleep in just a t-shirt and underwear, which I haven’t done since before my skin declared mutiny on my body (circa 20013?).

So as I’m over here pondering my existence in a semi-lucid state at 3 in the morning, the question that keeps popping up on the forefront of my mind is: this heat, what does this mean?

What does this mean? I’ve got a few theories.

  1. My skin has shown an unprecedented amount of healing lately. I have soft skin on my face, stomach, back, and thighs. Perhaps I have done the majority of my topical steroid withdrawal pemance and am finally seeing the results, aka having skin of normal thickness and elasticity and with the ability to retain heat and moisture.  Maybe. Or, maybe,
  2. I have finally hit the point where, despite still breastfeeding (which can delay this), my hormones are kicking back in, and I am soon to rejoin the ranks of menstruating-aged women. In which case, hormones could be the culprit for my heated sleep body. Or, perhaps,
  3. My circadian rhythm is so butchered from having to wake up at all manner of times during the night shift for the last 7 months (more if you count pregnancy months too) that my body doesn’t know what to do with un-externally regulated sleep interruptions, and so in a desperate attempt to keep its new status quo, it’s driving me awake via continued thermoregulation fluctuations. Maybe that’s it.

Or maybe it’s some culmination of the three of those things because as is often the case with complex systems like humans, we don’t always have a simple solution.

At any rate, I’m enjoying the fact that my little one is getting so much sleep, and that I’m getting some silky smooth patches of skin. I’m not stressed and as I am awake I am making sure to hydrate, so I’m sure in time I’ll learn to sleep again. So c’est la vie et bonne nuit (that’s life and good night).

all posts, miscellaneous

memory blast from the past (the “invincible” days)

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Photo by Leah Kelley on Pexels.com

When you’re young you fly on this invisible tether, unaware of the fleeting nature of your adventure, how you will not always be there, balanced confidently but precariously.

I often think back on my journey living with severe eczema and immediately I remember the onset of the first cascade of knocked-me-off-my-feet-and-never-found-solid-ground-again topical steroid withdrawal symptoms and think that was where it all began. But it’s just not true. Even when I was young (under 14), active and energetic, there were moments when eczema was already blossoming under the surface.

I remember hiking the presidential range with my uncle, his girlfriend (now wife), his cousin, an uncle-esque family friend, and my sister. When we reached the last cabin closest to Mount Washington, I recall the cold as a storm rolled in and remembered vividly when I washed my face in a cold bathroom in the morning with chilly water, I felt the creep of a growing itch under my skin.

Nowadays I know that there can be many triggers for eczema including temperature changes, but then, eczema was a weird seasonal rash that showed up only on the insides of my elbows, not on my face. I think my thoughts at the time were something along the lines of “oh, I must have eaten something that was contaminated lightly with peanut fragments”, because in my head, face itching had to be a sign of an allergic reaction.

It’s also non-humorously funny to look back and realize I was already becoming paranoid of food allergies (and sensitivities) as the culprit to my skin woes.

I also recall having (and to some extent still have) the belief that because I possessed any abdominal fat, therein lied the reason I had eczema. It wasn’t yet possible to accept that I wasn’t infinitely healthy and majestic, that my body wasn’t perfect, that I had my own personal dis-ease I would have to reckon with that would change my whole game plan. It was easier to think that I was just eating too much and therefore making myself less than perfect.

It’s interesting because I can still so easily transport back into that mindset and remember how vital I felt, how alive, how healthy. I didn’t feel disappointment that my body had betrayed me yet.

Now don’t get me wrong, I can still get optimistic about my skin’s healing progress and feel I have come a huge way along the path of recovery. But my confidence of almost immortality that I had once before, is not there.

Part of that makes perfect sense. I have grown up and matured, and since realized essential concepts like that my body is no longer growing up, that I have to maintain health by eating right and moving and controlling stress or I will grow outwards in a horizontal direction. I get that. But there is also this, I think what I used to call “the Peter Pan effect” that I recognize is gone. It was akin to the moment I turned 12 and had to firmly accept the idea that I was never getting into Hogwarts, not because it was fictional, but because I had aged out of my chance. I adjusted to change of aging in asymmetry, non-smooth block jumps.

I think that’s the hard part of it all. You have to accept that time moves forward and one day you are on the other end of the growth curve, in what I now like to call the maturation phase, giving in to the adage of us ripening well like rare vintage wines. But it is hard to accept that where you were once full of epiphyseal (growth) plates, you now have the potential for osteoporosis; where hyaline cartilage once ran amok, we now see arthritis. I don’t know, I think sometimes the reality of aging, even if it is done amazingly, is still a bitter reminder that our lives are meaningful because they end, and so it’s important to accept the ride and always strive for better and better days, even if there are road bumps, like severe eczema in my 20s; here’s looking to flawless skin in my 30s!

all posts, community, miscellaneous

featured on social media…

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Photo by Pixabay on Pexels.com

I forgot to mention that Dove’s Derma Series featured one of my Instagram posts this past December.

I love sharing my story and trying to help others understand what it’s like to live in my body and also be a mom, so I was thrilled this happened.

Here’s the link to it if you’re curious.